On August 1, 2014...My wife was just 36yrs old at the time of her Sudden Cardiac Death. Just five weeks earlier we welcomed home our third child. I was out of town for a new job and I encouraged her to load the kids up and head to her parents for help with the kids while I was away. She made it to her parents and that night at 1AM she suffered a cardiac death. Luckily she was up talking with her mother late into the night and there was a witness to the event. CPR was started and once EMS arrived they continued with CPR. She was shocked several times and finally a faint rhythm was found. Once in the hospital she fell into a coma and was on a ventilator. On the third day we decided to begin to ween her off the ventilator. As she began to get stronger and breath on her own, we decided to remove the propofol drip in hopes she'd regain consciousness. Propofol is quickly removed from the body so we expected signs of consciousness within about ten minutes. Three of the longest hours of my life later, she began to slowly come out of her coma. In the next few days she had a one wife ICD implanted and we headed off to rehab to learn how to walk, eat, etc., as it was obvious she sustained anoxic brain injury. Therapy went really well and she returned home two months later with a long road of recovery.
During the next few months she received several defibrillations.
On January 6th 2015, she went into V-Tach storm and received 53 defibrillations in a 3hr period. After this episode, we were medical transported to Duke. On arrival to Duke and during her initial evaluation there...she suffered 2 more shocks. She underwent electrical heart mapping and several ablations. During recovery her femoral artery ruptured, but was caught quickly and handled with no further issues.
To date, she has received 76 defibrillations. She exhausted her first ICD's battery during the v-tach storm and subsequently Duke installed a 2 wire ICD as she had a few episodes of A-Fib. Her latest shock occurred on 11/26/17.
Meds are increased each time she's shocked, to control PVC's...where everything starts from I her case.
I guess I'm just looking for support. It's hard to be a spouse and caregiver at the same time, and raise three young children at the same time. We have good days and great days...I'm very thankful and fortunate to have her still today.