Hello,
My son had an SCA last July (16 years old). I just received his genetic testing results which was positive for Long QT Syndrome. If anybody can give me information I would appreciate it.
Thanks!
Teri
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Hello,
My son had an SCA last July (16 years old). I just received his genetic testing results which was positive for Long QT Syndrome. If anybody can give me information I would appreciate it.
Thanks!
Teri
Comments
Long QT
Here's what the Mayo Clinic has to say. Also check wiki
http://www.mayoclinic.org/diseases-conditions/long-qt-syndrome/basics/d…
PBS video on Long QT
Hi Teri, You may find this video to be helpful: http://secondopinion-tv.org/episode/long-qt-syndrome. Best wishes to you and your son.
A Friend and Fellow Survivor
Hey Teri,
I am so glad you and your family have found additional answers and resources. While going into this new chapter of life, I wanted to let you know that there are several of us here at the SCA Foundation willing to talk with you and your son as well as a growing network of young survivors. You are not alone. Thank you for your concern, your son's survival and have a blessed day!