Finally an answer

Finally an answer


My son had an SCA last July (16 years old). I just received his genetic testing results which was positive for Long QT Syndrome. If anybody can give me information I would appreciate it.



Bob Trenkamp's picture
Bob Trenkamp wrote 4 years 30 weeks ago

Long QT

Here's what the Mayo Clinic has to say. Also check wiki

Bob Trenkamp, President
Saving Lives In Chatham County

SCAFoundation's picture
SCAFoundation wrote 4 years 29 weeks ago

PBS video on Long QT

Hi Teri, You may find this video to be helpful: Best wishes to you and your son.

Sudden Cardiac Arrest Foundation

Walter Watts's picture
Walter Watts wrote 4 years 23 weeks ago

A Friend and Fellow Survivor

Hey Teri,

I am so glad you and your family have found additional answers and resources. While going into this new chapter of life, I wanted to let you know that there are several of us here at the SCA Foundation willing to talk with you and your son as well as a growing network of young survivors. You are not alone. Thank you for your concern, your son's survival and have a blessed day!

Mission & Vision

The mission of the Sudden Cardiac Arrest (SCA) Foundation is to prevent death and disability from sudden cardiac arrest. The vision of the SCA Foundation is to increase awareness about sudden cardiac arrest and influence attitudinal and behavioral changes that will reduce mortality and morbidity from SCA.

SCA Newsletter

Sign Up with the SCA Foundation News in order to stay informed! (* required field)

Contact Us

The Sudden Cardiac Arrest Foundation would like to hear from you! If you have questions or comments — Contact Us!


Sudden Cardiac Arrest Foundation
7500 Brooktree Road
Wexford, PA 15090

Copyright © 2019 Sudden Cardiac Arrest Foundation. All Rights Reserved.

Web Design & Development, & Web Hosting By FastWebEngine