The Sudden Cardiac Arrest Foundation is conducting an ongoing survey of the members in its Sudden Cardiac Arrest Network who identify themselves as survivors. Interested survivors should first join the Network and then complete the survey here.
In addition, the Sudden Cardiac Arrest Foundation is working with researchers to facilitate studies among survivors in its Network. To participate in such research, see the opportunities below.
Interested researchers may contact info [at] sca-aware [dot] org (subject: SCA%20survivor%20research) for more information.
Laura Whitehead, Warwick Medical School, University of Warwick, Birmingham, UK: COSCA (Core outcome sets for cardiac arrest clinical trials) study
The purpose of this study is to make sure that the correct measurements are being recorded in cardiac arrest clinical trials and that these include the measurements patients feel are the most important. The survey is open until April 3, 2015. If you are a sudden cardiac arrest survivor and would like to participate, please contact info [at] sca-aware [dot] org (subject: COSCA%20study) . (See attachment for additional information.)
Annette J. McDonough PhD, CNS, Yvonne L. Munn Center for Nursing Research, Massachusetts General Hospital: Research Study for Young ICD Recipients
Nurse investigators at Massachusetts General Hospital in Boston are interested in young ICD recipients' experience with sleep during the first two years after ICD placement. You must be between the ages of 18 and 45 years, have an ICD that has been placed in the past two years, and be willing to complete a series of questionnaires. The questionnaires will take 10-15 minutes to complete. All data will be confidential and researchers will not collect your name or other identifiers. If you are interested, please contact info [at] sca-aware [dot] org (subject: Massachusetts%20General%20Hospital%20Research%20Study) .
Kelly Sawyer, MD, MS, and Robert Swor, DO, William Beaumont Hospital: An Assessment in the Variation of Surviving Sudden Cardiac Arrest
The purpose of this research is to assess the experiences and challenges faced by patients and their family members after survival from sudden cardiac arrest. The Principal Investigator is Kelly Sawyer, MD, MS, an SCA survivor, who now is Associate Research Director in the Department of Emergency Medicine, Beaumont Hospital, Royal Oak, Michigan. To participate in the survey, contact info [at] sca-aware [dot] org (subject: Beaumont%20Hospital%20Study) . See related attachments.
Cecilia Gal and Paul Kantor, Rutgers University: Constructing a Web-Based Survey Tool for ICD Patients
Lumei Tuomala, Sheila Roth and James J. Menegazzi, University of Pittsburgh: Quality of Life Post Sudden Cardiac Arrest: A Survey of Survivors from the Sudden Cardiac Arrest Foundation Survivor Network
Rachel Lampert, MD, Yale School of Medicine