Sudden Death: that is what happened to my only two children. Jimmy was only 22 years of age and Chrissy was only 21. Both died in their sleep suffering from a heart disorder. I knew nothing about it until it was too late to save my children. Jimmy died April 15, 2000, leaving behind a daughter Alexis, who was only two at the time. Only two years later, on July 25, 2002, my daughter died the same way as her brother--she just never woke up. She also left behind a baby girl only 10 months old.
Our family had been misdiagnosed with epilepsy. Instead we had SADS--
Sudden Arrhythmia Death Syndrome--or Long QT syndrome. This is an inherited condition and it strikes mostly young adults. I have Long QT--I just wish I knew this before. It is very treatable.
I choose to reach out and share my story in hopes of saving a life and sparing another parent from such pain.
Please contact me. Just a little awareness could save a life.
Email jackie_renfrow [at] yahoo [dot] com